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NF Strong

NF stands for neurofibromatosis. If your not familiar with the condition it cause tumors to grow on the nerves thro the body. It can cause little bumps to grow on the skin, spinal curvature, large and small tumors to form and cause deformities, migraines, deafness and even blindness. There are chances of mild to moderate learning disabilities and severe pain from the tumors growing on the nerves. One of the worst parts about it to me is there is a 50/50 chance of you passing this on to your child. Both M and myself have a very mild case of NF. Tomorrow May 17th is world NF awareness day. It is rarely talked about but effects 1 in 3000 people. There is a chance you may know someone who struggles with this everyday. So I’m asking tomorrow for you to light it up blue and green. Shine a light on NF to help find a cure. Please be sure to leave a comment or a pic of how you plan to light it up blue and green.

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just a mom
just a mom
May 17, 2020

I will be adding things soon. Just share the link or even word of mouth is appreciated

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Jenean Lannon
Jenean Lannon
May 17, 2020

Add stuff in Shop. How do I invite others?

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Jenean Lannon
Jenean Lannon
May 17, 2020

I’ll have to find something, maybe with both colors. I’ve still got my m’s minions shirt, maybe it’s time for a new one. Or a scarf, headband, bracelet, my last bracelet finally broke, but J still has hers. You used to make jewelry, or something like my shrimp pin in ribbons would work. The point is showing your colors even if you’re staying home. But showing it around might get people asking & them understanding. Most people I’ve talked with have never even heard of it or even know it exists & how common it is among children. It’s sad & hard to know it even exists. Maybe more awareness will finally lead to a cure. Love my little Minion…

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